Myeloma UK

SC026116

CONTACT DETAILS

22 Logie Mill, Beaverbank Business Park, Broughton, EDINBURGH, EH7 4HG
0131 557 3332
myelomauk@myeloma.org.uk
LOCALITY
North East

information DESCRIPTION

Registered as a charity in 1997, Myeloma UK is the only organisation in the UK focused on myeloma. We are helping myeloma patients live longer and with a better quality of life.

How? By accelerating the discovery and development and access to new treatments, while helping patients and their families cope with everything a diagnosis of myeloma brings.

We do this by:

- Funding a world-leading genetic research programme to discover and develop new “tailored” treatments;
- Funding a groundbreaking Clinical Trial Network that gives patients access to new life-extending drugs;
- Providing resources for healthcare professionals so that diagnosis is improved, best practice is shared and patients receive the best possible treatment and care;
- Working in partnership with decision-makers to ensure the speedy approval of new drugs, and that the NHS provides the services patients and their families need;
- Supporting patients and their families through a comprehensive range of services including our Myeloma Infoline and Patient and - Family Info days.

We receive no government funding and rely on voluntary donations and fundraising activities; our administration and running costs are kept to an absolute minimum.

ORGANISATION ACTIVITIES

Advice/Information Education/Learning/Training Health Help Lines Self Help/Support

Copyright © 2024 EVOC is a company limited by guarantee No. SC173582 and is registered Scottish charity No. SC009944.
Registered Office: 525 Ferry Road, Edinburgh EH5 2FF